Holidays with Lupus and Trigeminal Neuralgia Flares

If you have followed my blog for a while, you probably are aware that I also suffer from bilateral trigeminal neuralgia and atypical face pain as well.  I have been for fortunate with all of my health related issues in 2019, that the trigeminal neuralgia didn’t really flare too much this year.  So, naturally, my body decides to celebrate the holidays with lupus and a trigeminal neuralgia flare.

I figured I was definitely experiencing the beginning of a lupus flare this last week.  My joint and muscle pain was raging.  I noticed my hair was falling out and was literally everywhere.  My poor husband always seems to have long blonde hairs on his clothes and even his beard.  While he always laughs it off as he pulls each strand off, I can’t help but feel embarassed by it still after these last few years of dealing with it.  It seriously gets everywhere!

I awoke a few days ago to a giant lupus mouth sore in the roof of my mouth.  If you are one of the unfortunately lupus patients who deal with mouth and nasal sores, you probably understand that whole frustration in itself.  It hurts to eat anything.  I have tried chewing on the opposite side of my mouth, but food still seems to hit it and it hurts so badly!

Last time I got them, I was prescribed a “Magic Mouthwash” concoction and it helped to numb out the pain pretty well, but I am out of it.  I have been using Oragel to help numb the mouth ulcer and the teeth surrounding it because my nerve pain is extending into my teeth and ear at the moment.  The Oragel does help temporarily but I have to reapply it often.

While that helps the pain in my mouth, the pain in my head and face was getting to be too much.  I ended up going to urgent care yesterday.  I was prescribed a prednisone taper and given a shot of toradol.  Thankfully, the shot helped ease the extreme pain but by this morning, I could still feel the ache still lingering and nerve pain in my top teeth and jaw on that side.  So I am hoping this taper of steroids helps stop both of my flares right now.

As I write this, it’s Christmas Eve morning.  The holidays are usually stressful enough without us having to deal with health related issues, but when you have a chronic illness that stress can seem to double.  I have about a million to-do things on my list, but here I am blogging to the people who understand me most instead.

Life gets hard sometimes…really hard.

The holidays can be a difficult time for many of us and I just wanted to take a few minutes to tell my readers thank you.  Celebrating the holidays with lupus is a trying time for many of us.  This blog has become my outlet for when I am feeling bad and the messages and emails I get from other lupus warriors are incredibly inspiring and appreciated.  There have been times I have wanted to quit blogging or sharing my personal experiences with lupus and my many other health issues, but then I always get a message or an email that inspires me to continue.  Messages from people who like me, are simply out here trying to live beyond lupus.  Messages from people who are newly diagnosed or are scared they may have lupus.

These messages remind me of why I love my blog so much to begin with.  It’s an outlet.  An outlet that I normally wouldn’t have.  A place that I can share what I am going through and hope that I help inspire even one person to keep fighting, even for that one day.  I am a [somewhat] normal person, just a normal person fighting a battle from within my own body.

Even those who appear strong or have it all together are usually fighting a battle that many of us may never know or understand.

So, today I am going to count my blessings.  The ones that may be masked behind my incredible pain and fatigue on this glorious Christmas Eve morning.  I am going to thank God, the Universe, my doctors, my family and friends, my blog readers, my incredible body, and my even stronger mind.  I thank them all for keeping me afloat when many days this year, I thought I would drown.   Today, if only for today, I remain hopeful that life will indeed go on.  A life worth living and a life worth celebrating.

So Merry Christmas Eve to my fellow lupus warriors.  If you are like me and are celebrating the holidays with lupus, may you feel the magic of this beautiful day and see the beginnings of a new year filled with hope, strength, and good health.

 




Lupus and Kidney Cancer

I haven’t been really active on my blog in the last few months and that makes me sad.  I had to take a break due to my health and trying to juggle working and taking care of my family as well.If you have been following my story, you may know that I have had a chronically high white blood count for the last couple of years.  Low white blood counts are usually associated with lupus and the fact that I was having a HIGH count was puzzling, even for my rheumatologist.  So imagine my shock when I was diagnosed with lupus AND kidney cancer.

I also for the same length of time had been having chronic blood in my urine.  Of course my rheumy was checking my urine every 3 months at my visits, so they were definitely watching it closely.  About 2 years ago I had been referred to a urologist to try and find the cause of the microscopic blood in my urine.  He inspected my urinary tract with a camera and ran some scans on my kidneys.  The found a kidney stone in my left kidney.  I had never had a kidney stone in my life but it was not bothering me, so they left it.

Last years the stone finally made its way out and I made my way to being admitted into the hospital for a few days because of a bad kidney infection as well.  That was a horrible experience and I now understand what people mean when they talk about kidney stone pain.  I figured that would be the end of the blood in my urine…I was wrong.

In the spring of last year, I was referred to hematology in regards to my chronic leukocytosis.  At this time, my WBC (specifically my neutrophils) were around 17,000 and would drop and rise, but was always considered in the high range.

They ran many tests checking for various things including cancer.  It all came back negative and relatively normal…except for my white blood count.  Flash forward a year later and my rheumatologist is concerned because I was still experiencing a high WBC.  Recently, my WBC has gone up to around 23,000.  So my rheumatologist referred me again to the hematologist.  This time I saw a different doctor who was amazing.  She listened to my issues (which are plentiful lol) and I told her I just was not sure what was going on…but something was because I felt so bad the last year.

She ran more tests and while some counts were off, most tests came back negative.  She told me she wanted to run a CT scan of my chest, abdomen, and pelvis to at least rule out anything major.  I went and had my CT scan with contrast.  I had to drink a contrast before I had the scan.

lupus and kidney cancer
My results from CT CHEST ABDOMEN PELVIS WITH CONTRAST

Once the results came back, I was pretty shocked.  She told me that the scans showed I had pneumonia which I didn’t even know I had.  I took a course of antibiotics and am happy to say that it went away but I have had wheezing and breathing issues and am seeing a lung doctor at the end of this month.

Then they discover that I have a 3cm complex cyst on my ovary.  Luckily, after 2 ultrasounds they were able to distinguish it as a simple ovarian cyst and that it would go away on its own.

lupus and kidney cancer
lupus and kidney cancer

Then they found a 2cm mass on my right kidney.  On the report, it said “Can not exclude malignancy”.  This terrified me.  My hematologist then referred me a uro-oncologist.  Once I met with him, he explained my scan results in detail and even showed me the mass.  He told me that they were around 90-95 % sure it was cancerous from the scans alone, but the only way to know for sure was to take it out and wait for pathology.

At 32 years old, that’s not something you really expect to hear.  My maternal grandmother passed way from kidney cancer when she was in her 40s.  She was diagnosed in the early 90s and I was around 5 years old.  So the fact that I had a family history made my doctor that more suspicious.  He explained the possibility of it being a benign tumor but that in his opinion it needed to go either way.  There are many reports online that indicate many doctors do not perform biopsies on kidney tumors because of the risk that it could seed and spread the cancer cells.  Biopsy was never discussed in my case, so I am unsure of anything related to a kidney biopsy.

Kidney cancer is in the top 10 most common cancers in men and women.

At that first appointment, he scheduled me for a partial nephrectomy.  He explained that do to it’s close proximity to a vein in my kidney that when they went in for surgery, they may end up having to take the whole kidney instead of a part of it.  They also mentioned they may end up having to do a full open procedure because I had previously had my gallbladder removed as well.

My surgery date was scheduled for 6 weeks later and I was extremely nervous.  I have had surgery plenty of times in the past, but this one terrified me. I was unsure what I would even wake up to and the wait for my pathology report to show if it was indeed cancerous.

The surgery itself lasted around 3 hours.  Of course I was completely put to sleep for the procedure.  I will not lie when I say it was a pretty rough recovery.  I honestly feel like I underestimated the actual pain that I would have, due to my nerves being so frazzled because of the surgery itself.  I slept sitting straight up for a week.  I thankfully only had 6 small incisions spanning across the right side of my abdomen.  Luckily, they only had to take a part of my kidney with the tumor.  I was really concerned if I was left with one kidney due to having lupus and kidney cancer.

Lupus and Kidney Cancer
Pathology from my Kidney Cancer

Pathology came back and I found out that I had Stage 1, Grade 2 Clear Cell Renal Cell Carcinoma.  Thankfully, it was only Stage 1 and that it was contained to my kidney itself.  It had clear margins so they were able to get the cancerous cells completely out.  I have never felt so lucky in my life.  It has a small chance of recurring because it was caught early and because of the grade.  I will have to get many scans in the next few years to keep monitoring to make sure that it does not come back.

According to Medscape,

Clear cell renal cell carcinoma (CCRCC) is a renal cortical tumor typically characterized by malignant epithelial cells with clear cytoplasm and a compact-alveolar (nested) or acinar growth pattern interspersed with intricate, arborizing vasculature.

The American Cancer Society estimated that about 73,820 new cases of kidney cancer (44,120 in men and 29,700 in women) will occur in 2019.  It is believe that most people diagnosed with kidney cancer are around 64 years old.  It is pretty uncommon in people under 45 years old, but being 32 years old, I can tell you it does happen.

Kidney cancer is in the top 10 most common cancers in men and women, although it is more common in men.

While having cancer was terrifying, I honestly couldn’t help but think what if I didn’t have lupus?  I never would have been monitored the way that I am with my rheumatologist.  It was not there a year ago when I had numerous scans on my kidneys for my kidney stone.  I probably never would have pushed for any more scans, even though I constantly had flank pain in both of my kidneys.  I feel thankful and so lucky to be able to still be here for my children.

Its been about 3 weeks since I had my surgery and am happy to report that I have healed up pretty nicely and am no longer dealing with any significant pain related to this kidney cancer surgery.  I will be getting genetic testing done due to the fact of family history and my age.  I have a follow up with my doctor soon and will know further about the scans I will start getting and where we will go from here.  I will also be having a bone marrow biopsy soon to further research the cause of my high white blood count.

I was curious to see the statistics on those with lupus and kidney cancer.  I wanted to know if there was any sort of link between the two or if it was purely genetic in my case or neither.  I will definitely update you guys once I get my genetic testing.  Anyone else have a history of lupus and kidney cancer?




6 Work from Home Call Center Jobs

One of the most common questions I receive from other chronic illness warriors (and even those not suffering from a long term disease) are how to find legitimate work from home jobs online.  If you suffer from something like lupus or fibromyalgia, you may have found yourself searching for ways to earn income without having to leave your home.

I have successfully earned a somewhat steady income from working different positions online over the last 6 years.  Suffering from lupus, fibromyalgia, and trigeminal neuralgia makes it difficult for me to work a full time position.  When having to work outside of the home, I waste a lot of energy on just getting ready in the mornings.  This is something that people who do not have a chronic illness will probably never understand.  To me, this is energy spent that could have been used for my work or family.

There are many jobs that will consider remote workers, but many of them are contract or part time positions.  There have been many times that I have had to work a couple different projects to bring home a decent amount of money.  I always try to remember the saying, “Don’t put all your eggs in one basket”.

If you have been struggling with your job or your job search and are considering working from home, you should definitely check out the legitimate positions below.  These online jobs can help alleviate some of the stress that you may be experiencing.

Virtual Call Center Jobs

remote call center jobs
remote call center jobs

If you have any experience in customer service or secretarial positions, you may want to consider a remote call center job.  Many businesses are hiring for call center jobs online, giving you the ability to make a decent wage from home.  If the idea of helping others while lounging in your pajamas sounds like a dream come true, I would recommend researching the companies below who are hiring remote call center workers.

  • Arise Call Center Jobs:  Arise Virtual Solutions allow you to be your own boss and work from home!  They offer a flexible schedule that allows you to set your own hours and control when and where your work.  This is extremely helpful for those suffering from an unpredictable disease like lupus or fibromyalgia.  They work with many Fortune 500 brands and help you connect with these companies so that you can provide them with customer service services.  Don’t worry, it’s not as confusing as it sounds.  Plus, they provide state of the art training and help so that you can start earning money as soon as possible.

 

  • Cox Communications: Cox Communications is hiring for Call Center Customer Service Representatives for their Account Services Department.  They are looking for people who live around certain cities, so make sure to check locations when applying.  They state the primary responsibilities of their call center reps will be handling incoming calls from Cox Business and residential customers, delivering excellent customer service by asking questions, actively listening, building rapport, demonstrating respect, being informative and understanding their needs, requests or problems.  This position focuses heavily on understanding the needs of customers, so Cox is asking for 1+ year experience working in a position that requires meeting sales goals and 1 – 2 year work experience in a customer service role (not specific to just Call Center).  The great thing about this position is that it pays around $15 hour and they offer many benefits including Medical, Dental, and Vision Benefits the first day!

 

  • American Express: American Express is currently hiring call center agents for their Virtual Platinum Customer Care Professional positions.  These virtual American Express jobs are perfect for someone looking for an online job with a well respected company.  They are looking for people with at least 2+ years in a customer service and consultative sales environment.  While a Bachelor’s degree is preferred, it is not required.

 

  • Asurion: Asurion is hiring virtual Customer Care Representatives.  As a Customer Care Rep, you will provide customer service and remote support for customers inquiries about lost or damaged devices and resolve customer issues.  They are looking for people who have at least 6+ months of experience in customer service.  Their pay for remote workers is around $11 hr.

 

  • Gametime: Gametime is hiring for Fan Happiness Associates.  These virtual call center position entails helping Gametime customers with their ticket purchases.  Their job description states that you will be communicating with Gametime customers via phone, email, chat, and text.  This virtual call center job pays $15 hr

 

  • Teleperformance:  Teleperformance employs thousands of people globally in a work-at-home environment giving our clients multiple options to address seasonal volume spikes, staffing flexibility, and a differentiated workforce.  They are currently hiring for Customer Service Agents and some digging online shows they pay around $10-$11 hr.

 

 

 

 




Lupus Body Rash Update

Hello lupus warriors!  If you have been following my blog, you may have seen that I have been dealing with chronic urticaria since October 2018.  It is now June and I am currently experiencing another flare up of this dreadful lupus body rash.  When it first appeared, I was told it was Shingles.  After numerous visits with my healthcare providers, they believe they are hives of some sort.

If you have not ready my first post on my lupus body rash,
you can read it and see pictures here!

This rash produces hive like lesions that sometimes break open (this seems to only happen when their are hive like spots on my hands).  Sometimes they itch like crazy and other times they are just painful.  I have had swelling beneath these hives and they are incredibly uncomfortable.

These lupus hives each last around 3-4 days and leave an area of discoloration on my skin after the hives have subsided.  Over the past few months, I have had multiple outbreaks of these chronic urticaria and have had numerous tapers of Prednisone and also shots of steroids to help minimize the hives and swelling that I have experienced.

The steroids seem to help lessen the swelling and seems to help the hives go away a little quicker, but as soon as I am finished with my prescription, they start popping back up again!

I wish that I could say that I have found out a direct cause of these hives over the last 8 months, but unfortunately, I have not been given an answer to that just yet!  Over the past few months, I have seen my PCP, urgent care, the ER, my allergist, and am currently scheduled for a second appointment with a dermatologist in a few days.  All in regards to this lupus body rash.

My allergy doctor felt they were not related to my allergies (even though I do have many allergies and have had throughout my life).  He felt that if they were allergic hives, they would not last as long as they do (4-5 days usually for each hive) or leave a discoloration on my skin either.

I have met with the dermatologist about 2 weeks ago during the worst outbreak of chronic urticaria I have had so far.  He believes they may actually be related to either lupus itself or that my lupus has caused me to develop a stronger sensitivity to an allergy.  He then gave me a shot of steroids and prescribed me 3 different medications that he believes could help.

He also took some blood work that he says will help us determine if these recurrent hives are due to lupus or allergies.  I have not received the results of this lab work yet, but am hoping that he has some answers at my next appointment.

I have been taken these 3 medications for the past 2 weeks with hopes they would prevent these hives from appearing again.  They are a variety of different histamine blockers.  Unfortunately, they have not helped much.  They also cause extreme drowsiness that is almost worse than the pain and itching I am getting from this body rash.

I bet most of you can understand the frustrations of not knowing a trigger or ‘why’ and the struggle to deal with side effects of medications.  It seems to be a common thing when you have lupus and it sucks.

The medications I have been prescribed for my recurrent lupus urticaria include:

 

-Cyproheptadine 4mg 2x a day

-Hydroxyzine HCL 10mg 1x a night

-Cimetidine 200mg 2x a day

 

medicine for chronic urticaria
medicine for chronic urticaria

 

I will definitely update you guys once I go to my next appointment.  I am hoping that we can find some answers as to what is causing these hives and if it has anything to do with lupus.  I am including a number of pictures below of this rash.  Sometimes, I break out in only one or two areas on my body.  Other times, it can be over 20 different hives and swelling.  I feel extremely fatigued, nauseated, and increased joint pain many times I have a larger outbreak.

The photos include various stages of these hives.  Some are light and when they first begin to appear.  Others are when the swelling is pretty bad.  Some of the other pictures are marks that remain 2 weeks after the swelling has gone.  I hope these pictures help someone else who may be going through something similar.  I had some readers reach out to my by email and they are experiencing similar hives.  Let me know if you have gone through something similar and have been able to find out what is causing them!

 




Turmeric Face Cream

If you have been following my blog, you probably know that I love turmeric products.   Today, I want to tell you about my newest turmeric discovery- turmeric face creams.  There are so many awesome benefits when it comes to using turmeric, but with lupus, I really applaud it’s anti-inflammatory abilities!  Turmeric seriously makes a difference in my lupus joint pain and stiffness.  So naturally, I am always looking for new turmeric supplements that I can incorporate into my wellness plan.

Recently, I discovered turmeric face masks  I was amazed at how well these masks work to reduce redness on my face.  As much as I love the turmeric masks, I still deal with dry skin in the winter.

Read about our favorite turmeric masks…

I live in Ohio and if you have ever been to Ohio in the winter, you probably know exactly what I mean.  I began looking for a turmeric face cream that could not only provide anti-inflammatory benefits, but one that could also nourish my dry skin.

You may have heard of the anti-inflammatory benefits lupus patients can get from ingesting turmeric, but did you ever think that turmeric may also help you to reduce inflammation on your face and replenish lost moisture when used as a turmeric face cream?   Find my five favorite turmeric face creams below!

turmeric face cream
turmeric face cream

#1  Passport’s Clear Face Turmeric Lotion 

This turmeric face cream is a lightweight organic lotion that contains certified organic turmeric extract. Turmeric has anti-inflammatory, anti-bacterial properties that fight blemishes and help nourish your skin.  This turmeric cream contains soothing certified organic aloe vera, rooibos tea, coconut oil and lavender.

Not only does this magic face cream contain turmeric, but it also is infused with jojoba oil, olive oil, Vitamin E and neem oil for extraordinary results.

 

#2 Medix 5.5 Vitamin C Cream w/Turmeric

This is a 15 oz sized of turmeric face cream and it is infused with Vitamin C as well.  Created by Medix 5.5, their Vitamin C + Turmeric Face Cream provides your skin with a combination of anti-aging ingredients with natural antioxidants. The added Vitamin C in the face lotion helps promote even skin tone. Natural Ferulic Acid is a powerful antioxidant that targets sun damaged skin and of course, it contains turmeric to help fight inflammation on your face.

This nourishing turmeric face cream also contains other great natural ingredients such as shea butter, aloe vera, and natural extracts such apple, sunflower, and rosemary for the ultimate in skin hydration.

 

#3 Origins Dr. Andrew Mega-Mushroom Skin Relief Soothing Treatment Lotion

This light-weight face lotion from Origin not only is saturated with turmeric, but also Hypsizygus Ulmarius, Cordyceps and Reishi Mushrooms, Ginger, and Holy Basil.  This turmeric face cream is beneficial in providing your skin with hydration and reveals calmer and refreshed skin. 

If you are looking for a light weight turmeric face cream, this lotion by Origin is a great choice.  If you are looking for a thicker lotion, this is not the one to choose.  This lotion is for people who have oily skin or a combination skin that does not require a thick layer of product.  It provides a thin layer of moisture that helps to nourish your face and calm any redness you may be experiencing.

 

#4 TULA Probiotic Skin Care Hydrating Day and Night Cream

Now, if you are like me and are looking for the ultimate in moisture, this is the holy grail of turmeric face creams.  I absolutely love this nourishing turmeric face cream from TULA Probiotic Skincare.  Check out the reviews on Amazon and you will see that I’m not the only one who feels this way about their face cream!  This turmeric moisturizer is whipped and extremely nourishing to dry skin.  It is not too thick or greasy, so it can be worn under makeup or at night as a night cream.

This turmeric face cream has been clinically proven to soothe and reduce redness and the appearance of distressed skin, which is a plus if you suffer from redness on your face or if you suffer from lupus malar rash.

In addition to turmeric, this face cream also contains extracts of blueberry, watermelon, apple, and prickly pear.  If you are looking for a turmeric face cream that has been clinically proven to reduce redness, TULA is the best to choose.

 

#5 Priori Luxuriant Cream

If you are looking for a high-end turmeric face cream, Priori Luxuriant may have just what you are looking for.  This face lotion is infused with antioxidant-rich blend of turmeric root, green tea, grape seed, argan oil and olive leaf PLUS licorice root.  This proprietary blend helps to brighten and nourish skin in an ultimate spa like experience at home.  The active addition of turmeric root and antioxidant-rich botanicals in this face cream help reduce pigmentation and give a more even, illuminated skin complexion.  This turmeric face cream is formulated with potent botanicals containing vitamins B, C, E, and infused with anti-inflammatory and antioxidant properties, great for calming the skin.  Great choice if you suffer from redness and rashes on your face.

You may also like these turmeric products:







Lupus Doctors in Alabama

If you currently reside in Alabama and are looking for a lupus specialist, please see our comprehensive list below.  If you are currently seeing a lupus doctor in Alabama and have had great success with that doctor, please comment below and we can update our list.  This list is intended to provide lupus patients with easy access to locating a lupus doctor in Alabama.

We try our best to update this list frequently, but please let us know if any corrections should be made at info@lupuslyfe.com.

Lupus Doctors in Alabama
Lupus Doctors in Alabama

Lupus Doctors in Alabama

 

The UAB Division of Clinical Immunology and Rheumatology

The UAB Division of Clinical Immunology and Rheumatology has consistently been ranked as one of the top 12 clinical rheumatology programs in the country by U.S. News & World Report.

 

Rheumatology Associates of North Alabama

The RANA Rheumatologists in both our Huntsville and Florence locations are internal medicine specialists who have completed additional years of training and have sub-specialized in the care of patients with rheumatic diseases.

 

-Rheumatology Associates, P.C. 

The practice was founded in 1976 and consists of six board-certified and highly trained physicians that treat rheumatologic diseases. The physicians of Rheumatology Associates are affiliated with St. Vincent’s Hospital, Birmingham.

 

-Baptist Health

Baptist Health has partnered with UAB to bring the highest level of care to Central Alabama and the River Region. The UAB Multispecialty Clinic at Baptist Medical Center South joins nurses and staff from Baptist South with specially trained doctors from UAB to offer advanced care in many specialties, including rheumatology.

 

-Grandview Medical Group

At Grandview Medical Group, we specialize in the diagnosis and treatment of arthritis and other diseases of the joints, muscles and bones. Our rheumatology services include the treatment of: Arthritis, Autoimmune diseases, Pain disorders affecting joints, Osteoporosis, Gout, Lupus, Tendinitis

 

-East Alabama Arthritis Center

Some of the most common conditions seen in her practice include rheumatoid arthritis, lupus, Sjogren’s syndrome, scleroderma, osteoporosis, vasculitides, back disorders, joint disorders, and disorders of the connective tissue.

 




Apple Cider Vinegar and Lupus: Plantars Wart Natural Treatment

For many years, I heard and read about the amazing benefits of apple cider vinegar.  I honestly felt it was one of those old- school home remedies and that it really could not do the things people on the internet said.  Flash forward to 2019 and imagine my amazement when I realized the benefits apple cider vinegar had on various lupus issues.

When it comes to living with lupus, I have quickly realized that my body can become a medical mystery.  Things that most people do not have an issue with, my immune system does thanks to lupus.  I had an issue with a plantars wart on the bottom of my right foot about 2 years ago.

This plantars wart stayed for a long time due to lupus, even though I did not really understand that at first.  The plantars wart was on the pad of my right foot and started out looking like a small callous.  For a month or so it kept getting larger and then it began to hurt as well.  It was just kind of an uncomfortable feeling at first, but that soon changed.

The larger the plantars wart got, I became to become a little worried.  I went to the store and bought a can of the freezing wart remover.  I was excited to get rid of this disgusting looking wart.  I froze the wart according to the instructions on the back of the can.  I waited…and waited.  The plantars wart remained, unknowingly to me, because of my lupus.

Lupus has been known to cause the body to take much longer to fight off viruses and bacteria.  The same viruses and bacteria that a person without lupus could fight off quickly.

Soon, the wart was beginning to grow larger and larger.  It was almost the size of a quarter and I had begun to experience significant pain when walking, due to the pressure of the wart.  I bought another can of wart remover and once again, tried to freeze it at home.  Once again, this wart treatment failed for my lupus plantars wart.

I then went and bought a small jar of salicylic acid.  I had read a few posts online about how the salicylic acid would work better at getting rid of my plantars wart than the frozen spray I had previously used.  I applied salicylic acid to my wart a few times a week over the course of about a month.

It was working in the sense that it was definitely peeling layers of skin away from the wart, I had actually had a deep pit where it was!  But once again, my lupus caused my body to not be able to fight the plantars wart effectively.

My doctor finally told me that I was most likely going to need to have the wart surgically removed because of it’s size and the fact that it was not able to be treated.  I knew that if the wart itself hurt that bad to walk, I could only imagine the pain I would have once they dug it out in surgery.

I remember coming home and scanning Google for home remedies for plantars warts.  I came across numerous articles and forum posts about people soaking their foot in organic apple cider vinegar for a few times and that their plantars wart vanished.

 

apple cider vinegar lupus plantars wart
apple cider vinegar lupus plantars wart

 

I had spent quite a lot of money and time attempting to remove this plantars wart with special treatments from the store.  I really felt that there was not a legit way apple cider vinegar could remove my lupus plantars wart.

But hey, it was a lot cheaper than surgery….so I gave it a shot.  I went to a local store and purchased a big bottle of organic apple cider vinegar.  I soaked my foot for about 5 minutes 1x a day for a week straight.  After a week of soaking my lupus wart in apple cider vinegar, I could not believe it!  I could literally see the wart going away and new skin being formed.

At this moment, I truly believed that it was just coincidental and that the wart would still remain under the skin.  But when I began to notice the pain literally disappear over the next week, I was truly astonished!

This cheap bottle of apple cider vinegar had done what my lupus body couldn’t, it cured my plantars wart!  I now speak about the benefits of apple cider vinegar to anyone who will listen.  I tell them that you can purchase it for so cheap, that it truly is worth a try.

If your lupus causes you to fight off plantars warts slowly, you may want to try soaking your foot in some organic apple cider vinegar.  You may be surprised to see it starting to disappear soon after beginning this apple cider vinegar treatment.

Let me know if you have had any success using apple cider vinegar in your lupus wellness plan!




SPF Clothing for Lupus Warriors in 2020

Do you have lupus and struggle to get adequate SPF protection for the sun’s harmful rays?  If you are like a majority of people who suffer from photosensitivity with your lupus, you probably already work hard to wear a broad spectrum SPF sunscreen daily.  SPF clothing for lupus patients is extremely important, especially when it comes to preventing lupus flares.

But were you aware that you can actually buy SPF clothing that can help protect your lupus skin from the sun? 

spf_uv clothing that protects your skin

If you find your photosensitivity is causing your lupus to flare, you may want to consider purchasing some high quality clothing that offers great SPF protection.  By eliminating the sun as a trigger, you may be able to better manage lupus flares.

We have created a list of some awesome SPF clothing that can help lupus warriors protect their skin.

If you are looking for the best sunscreen for lupus, check out our post here!

 

1. Vapor Apparel Women’s UPF 50+ UV/Sun Protection Long Sleeve T-Shirt

9. ATTRACO- Long Sleeve Rash Guard Top Zipper Swim Shirt

Just because you have lupus doesn’t mean that you have to miss out on all the fun in the sun!  Attraco has created a long sleeved rash guar swim shirt that provides optimal protection from the sun while allowing you to still play in the surf.  With its vibrant color selections and optimal sizing choices, if you are a lupus warrior looking for sun protective clothing, this is a good choice!

10.  Ubestyle UPF 50+ High Waist Women’s Swim Leggings 

I don’t know about you, but I personally live in leggings.  What a surprise it was to learn that SPF clothing also included my favorite clothing staple since being diagnosed with lupus!  Not only do these leggings offer optimal sun protection for swimming or yoga, but they are comfortable enough to add to your daily wardrobe!

Conclusion:

If you are a lupus warrior looking for SPF clothing to help protect your skin, make sure to try out some of these awesome choices from our list.  It is important to wear sunscreen daily but also to take measures to ensure that your clothing offers prime protection from the sun’s rays.

 




Lupus Mouth Sores

Are mouth sores a sign of lupus?

One of the symptoms I get with lupus are mouth sores.  According to Kaleidoscope Fighting Lupus, Mouth sores (also referred to as oral lesions or ulcers) occur in approximately 40-50% of lupus patients and are one of the most common symptoms of lupus. While many resources online say that lupus related sores are mostly painless, I have had a few that were really painful!

I have always gotten canker sores in my mouth along my gums, tongue, and cheeks.  The mouth sores I get from lupus are usually in the roof of my mouth.  I have noticed a cycle to these lupus mouth sores in the roof of my mouth.  They usually start out without pain as a bump in the roof of my mouth.

I can usually feel when they start because it feels kinda swollen.  Almost like how it would feel if you stabbed the roof of your mouth with a sharp chip or something.  Taking a picture of the lupus mouth sore in the roof of my mouth usually appears like a red spot at this time.

What causes lupus mouth sores?

Lupus can cause mouth sores due to overwhelming inflammation in the tissues.  Oral lesions associated with active lupus are usually red ulcers surrounded by a white halo and white radiating lines. These are the more typical “discoid” lesions and are seen in people with active disease.  These types of lesions may or may not be painful, and most often occur inside the cheeks, on the hard palate (roof of the mouth), and on the lower lip.

 

What do lupus mouth sores look like?

Lupus mouth sore at the roof of my mouth.
Lupus mouth sore at the roof of my mouth.

 

Then it goes through a stage where I can actually feel the layer of skin sloughing off.  Once it starts doing this is usually when the lupus mouth sore starts to hurt.  If I were to see a picture of it in this stage, it looks more like how a canker sore would look with a white center and red ring around it.

It slowly opens up into a legit sore and stays like that for a while.  If you have ever had a lupus mouth sore in the roof of your mouth, you probably know how uncomfortable these lesions can be.

I have used things like Blistex and Oragel to numb these mouth sores when they hurt.  Many lupus warriors I have spoken with also use a prescription grade “Magic Mouthwash” they get from their doctors.  This mouthwash works wonders for lupus mouth sores that are incredibly painful.

If you suffer from painful mouth sores and lupus, you should ask your rheumatologist about this numbing “Magic Mouthwash” to see if it could help you.

If you are looking for the type of Blistex I use on mine, you can find it here.

I like this brand because it offers an easy application process.  This professional strength gel really helps numb the mouth sore pain and with it’s soft brush, it makes application to the roof of your mouth really easy.  Of course, this only temporarily masks the pain of my mouth sores, but it does offer some immediate relief as soon as you apply it.

 




5 Autoimmune Food Bloggers You Should Follow

 

Have you been searching for tips on learning to reset your eating habits with an autoimmune diet?  Nutrition plays a vital role in your body and can truly make a dramatic difference in how your body manages autoimmune symptoms.

If you are like me, eating right has always been a struggle for me, even prior to my lupus diagnosis.  Over the last year, I have experimented with many recipes online from some amazing bloggers who focus on the AIP diet in their blogs.

These autoimmune bloggers are heroes in my eyes!  Through hard work, research, and passion, these bloggers have provided those with autoimmune diseases an easy way to start implementing nutrition changes.

If you have been considering following an autoimmune diet and have been searching for the best ways to get started, check out our list of the 5 Best Autoimmune Bloggers You Should Follow!

 

5 autoimmune bloggers you should follow

 

1. Angie and Mickey at “Autoimmune Wellness

One of my favorite sites to learn all about the Autoimmune Protocol is on Autoimmune Wellness.  This blog is run by two amazing women who together battle five autoimmune diseases.

Mickey Trescott is a Certified Nutritional Therapy Practitioner and coach.  Mickey is also a best selling author with her book, The Autoimmune Paleo Cookbook.  Her expertise in living a life with an autoimmune disease also lead her to becoming a co-author of The Autoimmune Wellness Handbook.  

Angie Alt is Certified Health Coach and Nutritional Therapy Consultant and co-blogger of the Autoimmune Wellness.  She is the author of the award-winning book: The Alternative Autoimmune Cookbook: Eating for All Phases of the Paleo Autoimmune Protocol and is also the co-author of The Autoimmune Wellness Handbook.  

 

One of my personal favorite recipes on Autoimmune Wellness is the Apple and Turmeric Jelly recipe!

https://www.pinterest.com/pin/16044142409247614/

 

Together, these two amazing women blog about living and surviving an autoimmune life style through nutrition. 

 

If you have not checked out their amazing blog, you can check it out here.

 

2. Kate Jay with “Healing Family Eats

Kate Jay is the blogger of Healing Family Eats.  Kate shares many great tips and recipes that follow an autoimmune lifestyle  Kate is a Nutritional Therapy Practitioner, Certified AIP Coach and trained chef with a focus on creating, delicious, nutritious, and healthy meals for those with autoimmune conditions.

As a trained chef, let me tell you, her recipes are amazing and seriously delicious.  If you are looking for an easy way to ease into an autoimmune diet, I recommend by starting off with one of the Healing Family Eats smoothies or shakes.  Smoothies and shakes are easy and refreshing.  They offer a quick way to give yourself a nutritious start to your day without investing a lot of time.

My favorite shake on Kate’s autoimmune blog, is the Raspberry Turmeric Collagen Shake.

https://www.pinterest.com/pin/16044142409247707/

 

Most of us have probably heard of the amazing capabilities of turmeric, so you know that a shake or smoothie with turmeric means autoimmune business!  Once you taste this refreshing and cool Raspberry Turmeric Collagen Shake, you will definitely be checking out “Healing Family Eats” often for new AIP recipes!

Be sure to check out “Healing Family Eats” here!

 

3. Maria with “Zesty Paleo

Maria is the inspirational blogger behind  Zesty Paleo.  Maria is a warrior who battles the autoimmune disease Hashimoto’s.  She uses her experience and training in both, conventional and alternative medicine to create a one of a kind autoimmune food blog.

If you take a look through the delicious pages of Zesty Paleo, you can easily see why Maria’s autoimmune food blog made our list.  She has some of the most unique recipes in the autoimmune community in my opinion.  So if you are looking to create some unique dishes that are AIP friendly, you should definitely check out her blog.

Now, let me explain why Maria is even more amazing..she created a delicious Paleo AIP Ice Cream recipe….I know, right?!?!  Anyone who can create a healthy and nutritious ice cream deserves recognition!

 

https://www.pinterest.com/pin/16044142409247742

 

4. Rachael with “Meatified

Rachael is an avid and truly amazing food blogger and cookbook author. Her blog is beautiful and loaded with many high quality photos that entice you to try a variety of her AIP recipes.   She has a lot of great recipes that do not require a whole lot of prep or cook time.  These are the types of recipes that I personally love.  Some days, lupus just takes so much out of me. Cooking highly nutritious and delicious meals can require a lot of effort and time that I just do not have.  This is one of the many reasons I love Rachael’s AIP recipes.

You can create this AIP friendly glazed salmon below in 25 minutes!

Roasted Pomegranate Glazed Salmon with Maple & Ginger AIP recipe from Meatified.

https://www.pinterest.com/pin/16044142409247824/

 

5. Mikaela at “Slightly Lost Girl

Mikaela is a Crohn’s disease warrior who started the blog, Slightly Lost Girl.  She documents her tips on living a healthy lifestyle while fighting an autoimmune disease and has some great AIP friendly recipes that she shares with her readers.

She also shares a variety of AIP recipes that include AIP friendly drinks, AIP friendly main dish recipes, and AIP friendly desserts.

One of my favorite recipes from Slightly Lost Girl, is her Honey Balsamic Slow-Cooker AIP Short Ribs.  Yes, you heard that right.  AIP friendly ribs cooked to perfection in your slow cooker!  

https://www.pinterest.com/pin/16044142409247880

 

 

If you have been looking for ways to start an autoimmune diet to help you better manage your autoimmune symptoms through nutrition, these 5 autoimmune blogs would be a great way to start!  Eating healthy and specifically for autoimmune diseases does not have to be challenging.  Many of these recipes are created by bloggers who are fighting an autoimmune disease themselves.  They understand the challenges that someone with autoimmune issues can face when it comes to preparing healthy and AIP friendly meals.  We all have to start somewhere, and starting off with an easy shake or smoothie can be just enough confidence you need to really boost your lifestyle changes.