Easy Tips to Manage Lupus and Stress
T.E.N.S stands for transcutaneous electrical nerve stimulation. TENS Units are are predominately used for pain relief and the treatment of pain and nerve related pain conditions. They are used in a variety of settings and can be very beneficial to patients who suffer from muscle and nerve pain. If you have lupus and/or fibromyalgia, you may want to consider investing in a TENS Machine.
It is vital to inform your doctor BEFORE beginning any therapy with a TENS unit or similar device. TENS Machines are not suitable for everyone. They can be harmful in people with heart conditions or those who may be pregnant. It is important to speak with your doctor to see if using a TENS Machine could be beneficial to your lupus and/or fibromyalgia symptoms. A TENS Unit is a small device (usually battery operated) that can provide painless stimulation to help ease sore muscles, nerves, and joints. Many lupus and fibromyalgia patients have found pain relief using a TENS unit. We have created a list of the Top 4 TENS Units that we love for the price and their effectiveness.
Do sore and aching muscles keep you from enjoying your life? This TENS device offers an additional heat option to help provide temporary pain relief for your shoulders, waist, back, arms or legs. Choose from 20 intensity levels and 8 pulse modes to customize your experience and get back to living fully.
|Electronic pulse stimulation
Gel-style electrode pads
What You Get
Modes and Their Intended UsesTENS – Modes 1, 2, 4, 5 AND 6
PMS – Modes 1 and 3
What You Get
What It Does
What would you do if muscle aches and pains didn’t get in the way? Hit the golf course? Enjoy an afternoon walk or a morning run? With 10 different modes to suit your personal comfort level, this portable, dual-output T.E.N.S. device uses low-frequency pulses to provide temporary pain relief, soothing relaxation and even deep-tissue stimulation. It’s time to take control of your pain management and get your life back.
|FDA-cleared, dual-output personal temporary pain relief device
Provides unique, low-frequency pulses
6 manual modes
4 automatic modes
|Easy to use
Adjustable garment belt
Adhesive electrode pads
What You Get
Are you tired of dealing with sore muscles from your lupus or fibromyalgia? If you suffer from muscle pain, this Pain Therapy System can provide temporary pain relief. Dr. Ho’s Pain Therapy System Pro is great for temporary relief of sore muscles from work, exercise or household activities as well. It is noted as being extra comfortable to use and feels like a soothing massage. We love the Dr. Ho Pain Therapy System Pro because it also comes with foot therapy accessory pads that can help offer relief for tired and achy feet as well. There are seven different stimulation modes that make it easy to find your perfect setting depending on your needs. It also comes with two sets of wires that help you share the soothing sensation with a friend. This Pain Therapy System Pro also comes with 20 adhesive pads and displays on an easy to read LCD Screen.
It is recommended for the temporary relief of pain associated with sore or aching muscles.
|Recommended for the temporary relief of pain associated with sore or aching muscles due to strain from exercise or normal household and work activities
Proprietary auto-modulated waves
7 massage/stimulation modes
2 separate ports
Self-adhesive gel pads
Comfortable to use
|Easy-to-read LCD screen
Rechargeable built-in battery
Pad placement chart
What You Get
Always consult with your doctor before trying any new device. TENS Units are not to be used by everyone. They are not intended to diagnose, treat, or cure any disease or problems.
When it comes to researching Lupus, there is one book that often comes into most discussions. If you are part of any lupus Facebook groups or patient forums, I am almost positive that you have heard of or even read The Lupus Encyclopedia. This very informative book on lupus is like the holy grail of all books on lupus. This authoritative book was written by world renowned Dr. Donald Thomas. The Lupus Encyclopedia is a staple on the bookshelves of many rheumatology doctors and students and it is quite easy to see why.
According to Amazon,
“The Lupus Encyclopedia is an authoritative compendium that provides detailed explanations of every body system potentially affected by the disease, along with practical advice about coping. People with lupus, their loved ones, caregivers, and medical professionals―all will find here an invaluable resource. Illustrated with photographs, diagrams, and tables, The Lupus Encyclopedia explains symptoms, diagnostic methods, medications and their potential side effects, and when to seek medical attention. Dr. Donald Thomas provides information for women who wish to become pregnant and advises readers about working with a disability, complementary and alternative medicine, infections, cancer, and a host of other topics.”
Watch this video from Dr. Donald Thomas on when he first received the copy of his book, The Lupus Encyclopedia.
Dr. Donald Thomas has been practicing rheumatology for over 20 years. His training is quite impressive and details his authority on lupus. Donald E. Thomas, Jr., M.D., FACP, FACR, is an assistant professor of medicine at the Uniformed Services University of the Health Sciences and teaches rheumatology at the Walter Reed National Military Medical Center. He is a practicing physician and currently serves as a member of the Medical-Scientific Advisory Council of the Lupus Foundation, DC/MD/VA chapter.
His training includes:
Dr. Donald Thomas has been recognized through various awards and achievements over the past years. These include:
Source: US News
Many people who suffer from lupus symptoms turn to The Lupus Encyclopedia to gain credible information on how the body may react to lupus. Lupus is a tricky disease to diagnose and sometimes even harder to correlate specific symptoms that may be out of the ordinary ‘lupus realm’. This amazing book has provided vital and possibly even life saving information and is a must for every rheumatologist and lupus patient.
If you are currently suffering from lupus and looking for a lupus book of some sort, I highly recommend The Lupus Encyclopedia. When it comes to researching lupus, there really is not a better book on the market that provides such detailed and specific information in regards to lupus. This book could also make a great gift if you have a loved one who is suffering from lupus.
“A wealth of detail on the many ways lupus affects the human body, the various related treatment options, a range of patient resources for support, and more… a caring, comprehensive guide to understanding and coping with lupus.”
“The Lupus Encyclopedia is [a] carefully-researched, easily-understood and comprehensive book. It is, as it claims, an ENCYCLOPEDIA… If you [could have] only one book in your library about lupus, The Lupus Encyclopedia might well be it.”
(The Lupus Guru)
“There is great depth and much to learn from reading and referring to this important book… This book should stand the test of time as one of the great books about this complex auto-immune disease.”
(Lupus, the Adventure Between the Lines)
“I highly recommend The Lupus Encyclopedia. It’s an amazing source of information, and I feel empowered by the fact that I have a reliable resource to turn to whenever I need it. No matter what your symptoms are or the level of severity, you owe it to yourself to get this book.”
“The Lupus Encyclopedia is a book that that every lupus patient should have in their home library. It’s the most comprehensive lupus book out there, and is a valuable resource for anyone searching for a detailed and in-depth explanation of this complicated and mysterious disease.”
(Sara Gorman Despite Lupus)
“This is a highly readable medical text… This encyclopedia would be useful for public libraries, medical libraries, or academic libraries.”
(Amy B. Parsons American Reference Books Annual)
“… packed with facts, advice and encouragement…”
(The Nursing Times)
“This title strikes a pitch perfect balance: on one side, there is information of value to those suffering from or caring for the condition, on the other, data suitable for clinicians seeking a better general understanding of the condition. This volume represents outstanding value for money and would be a useful addition to medical, healthcare and personal bookshelves.”
“We can’t imagine a more thorough, readable guide to lupus than this.”
“People who have lupus and their primary care doctors will find in this book all the information they need.”
(from the Foreword by George C. Tsokos, M.D., Harvard Medical School)
Shortly before I was diagnosed with lupus, I was diagnosed with Trigeminal Neuralgia and Atypical Face Pain. Truth be told, my trigeminal neuralgia is a big reason that I ended up in the process of getting diagnosed because it is a pain that is truly debilitating. I could push past the sore and stiff joints, the sore muscles, and even the lupus fog for the most part. Yet, I could not push past the severe nerve pain in my face and head. When my trigeminal neuralgia flares, it literally feels as though my brain is inflamed and as though I am being stabbed in the head. Not like a dull pounding migraine stab, but literally, a piercing, hot-searing electrical pain deep within.
I would also get excruciating migraine like pressure, sensitive skin on my face and scalp, and an electrifying stabbing pain in my ear and head. The sensitive skin feels as though you have a bad sunburn or maybe even rug burn. My hair hurt. Each strand was painful. The slightest breeze of cold air can set it off. My husbands beard can set it off. Being sick can set it off and having lupus definitely sets mine off. I’m still unsure if my TN is caused by lupus, or if the trigeminal nerve is just aggravated by my lupus inflammation, but they seem to like to flare at the same time….and it hurts like hell.
Trigeminal Neuralgia is an incredibly painful and chronic condition that causes the trigeminal nerve to send electrifying and shooting pain into a person’s face. The trigeminal nerve is also known as the 5th cranial nerve and is the most widespread nerve on the face. Trigeminal Neuralgia is also referred to as tic douloureux or simply TN. It has been repeatedly coined the “suicide disease” by many people who suffer it’s wrath and in various online literature. Trigeminal Neuralgia is said to be one of the most painful diseases known to man.
There are a few causes of trigeminal neuralgia. Most people Google causes of trigeminal neuralgia and immediately multiple sclerosis comes to mind. In patients with MS, damage to the myelin sheath protecting the nerve is usually responsible for trigeminal neuralgia in these people. Another common cause of trigeminal neuralgia is vascular compression.
With lupus, there is not a whole lot of medical literature on the amount of lupus patients who also have trigeminal neuralgia. Nervous system involvement in SLE has been reported to vary from 40% to 70%. Trigeminal neuropathy is seldom mentioned as a symptom in lupus but has been observed as the only neurological manifestation of the disease among 2 cases published.
Vasculitic changes, neural tissue fibrosis, and increased permeability of trigeminal blood vessels seen among lupus patients may increase the risk of lupus patients to develop trigeminal neuralgia. However, why the trigeminal fibers are involved in lupus patients with these changes are still unclear. More studies and research need to be done in order to fully understand the correlation between lupus and trigeminal neuralgia.
Benlysta is a prescription medicine given via infusions or auto-injections for patients with systemic lupus erythematosus (SLE or lupus) who are on other lupus medications. Benlysta is the first medicine approved by the FDA in over 5o years for the treatment of lupus. Benlysta has been clinically studied in over 1,000 lupus patients and the results have show a reduction in lupus disease activity when taken with other lupus medications in comparison to those that were just on other medicines besides Benlysta. Benlysta is considered a biologic and works unlike other medications being taken for lupus.
If you have lupus and are considering treatment with Benlysta, it is important to speak with your rheumatologist about the medicines you are currently taking for your lupus disease activity. It is unknown if those with severe lupus nephritis or SLE central nervous system involvement will benefit from a biologic like Benlysta. Benlysta is offered via IV’s in infusion centers monthly or you may be able to be prescribed the auto-injections that you must take weekly.
According to Benlysta’s website, Benlysta has been shown to cause some serious side effects. Some of these side effects may cause death. They also state that it is unknown if Benlysta is the actual sole reason behind some of these serious side effects. It is also important to note that not everyone will experience side effects, let alone serious ones.
Some patients are offered a pre infusion cocktail of an anti-histamine before receiving their infusions, be sure to ask your rheumatologist the procedure for your infusions. It is important to discuss any side effects prior to receiving Benlysta and be sure to speak with your doctor immediately if you have any side effects listed below after receiving Benlysta.
Many people with lupus experience photosensitivity. This increased reaction to the sun can cause rashes and flare ups in those living with lupus. Many lupus patients ask how long after sun exposure with they encounter a lupus flare. This is a hard one to answer, due to the fact each lupus patient presents differently. For this reason, it is extremely important for lupus patients to wear sunscreen daily. Not only is wearing sunscreen daily when you have lupus, but also the type of sunscreen you use is important as well.
Read below to find out which brands make the best lupus sunscreen. When it comes to looking for lupus recommended sunscreen, we understand the importance of finding one that keeps your skin safe and your lupus flares at bay.
Having an increased sensitivity to UV rays means that a person is photosensitive. Photosensitivity describes sensitivity to the UV rays from sunlight and even indoor fluorescent lighting. In people with lupus, photosensitivity can cause catastrophic damage and disease activity.
Many lupus patients who experience photosensitivity from the sun and fluorescent lighting can experience an increase in skin rashes, fever, joint pain, weakness, fever, and malaise in people who suffer from both skin (cutaneous lupus) and systemic lupus (SLE). Wearing a protective sunscreen daily can help. Finding lupus skin care products are an important part of living with lupus.
Single patient observations were made showing that sunlight could actually aggravate existing SLE disease activity. This report also state that using a tanning bed with SLE lupus could also aggravate the disease. Patients also reported various SLE disease symptoms that were increase by exposure to the sun. Some of these included classic lupus symptoms like weakness, fatigue, and joint pain.
There was also a small study conducted by Victoria P. Werth, MD and colleagues at the University of Pennsylvania that focused on the extent of lupus and photosensitivity. They determined no relationship between race and photosensitive presentation. This means that lupus patients of any race are just as likely to be sensitive to sunlight that can cause an increase in lupus disease activity.
They were able to conclude that Subjects with generalized cutaneous reactions (PMLE-like and sting/itch) and those who experienced sun-induced systemic symptoms of joint pain, weakness, fatigue or headaches, tended to have more systemic lupus disease activity. The correlation between the sun and lupus flare-ups is becoming a more widely known fact in those with lupus.
A good skincare routine for lupus patients should always include a broad spectrum sunscreen in order to prevent and increase of lupus symptoms considering the amount of lupus patients who experience photosensitivity.
For many people diagnosed with lupus, finding out that they are sensitive to the sun can be extremely hard to deal with. Many of us are sun lovers and many of us are also deficient in Vitamin D which can also cause many debilitating symptoms. Seems like a catch 22 huh? That’s because it is.
Welcome to the life of a lupus warrior. As a lupus patient, we have to work hard to find ways to overcome many of the battles we face as lupus sufferers, especially when it comes to sun exposure. If you have ever experienced a lupus sun rash, you can understand the importance of protecting your skin from damaging rays from the sun and even florescent lighting.
Read on to find out which SPF broad spectrum lupus sunscreens made it in to our list of the top 5 best lupus sunscreen products on the market today and help take control of your lupus photosensitivity.
The Lupus Foundation recommends checking for these 3 things when choosing the best lupus sunscreen to protect against a lupus sun rash and other SLE symptoms:
AVEENO PROTECT + HYDRATE Lotion Sunscreen with Broad Spectrum SPF 50 provides hydrating sun protection to keep skin soft, smooth, and feeling healthier. This sunscreen, combined with nourishing oat, delivers broad spectrum UVA and UVB sun protection while hydrating skin. For use on face and body, the formula is fast-absorbing, oil-free, non-comedogenic, and sweat- and water-resistant for 80 minutes.
Help give your skin superior protection from harsh summer elements with NEUTROGENA BEACH DEFENSE Sunscreen Lotion with Broad Spectrum SPF 70. Ideal for active families, this beach-strength sunscreen is clinically proven to help defend against the signs of sun and water damage. This sunscreen is formulated with clinically-proven HELIOPLEX, an advanced sunscreen technology with superior broad-spectrum protection from skin-aging UVA rays and skin-burning UVB rays. This fast-absorbing sunscreen is lightweight, oil-free, and PABA-free.
The Australian Gold Botanical SPF 50 Mineral Lotion is more than just powerful sun protection – it’s gentle care for your skin. This non-chemical sunscreen lotion delivers non-whitening protection with a refreshingly luxurious, powdery-clean feel. Rich in vitamins and antioxidants from native Australian botanical ingredients, it allows you to enjoy the sun your way, protected from both UVA and UVB rays, and water resistant for up to 80 minutes. Discover the deliciously subtle scents and non-greasy, non-sticky feel of the Australian Gold Botanical Line and experience worry-free days in the sun.
MISSHA’S All Around Safe Block Sebum Zero Sun delivers high-performance broad spectrum UVA/UVB protection with SPF 50+ in addition to skincare benefits. Green tea and tea tree extracts control sebum production and mattify skin, and antozone-rose and thanaka protect and soothe.
When dealing with lupus and photosensitivity, it is important to choose a broad-spectrum sunscreen with UVA and UVB protection. UVB rays are the main cause of sunburn. UVA rays may also contribute to skin cancer and premature aging. All EltaMD sunscreens are formulated with zinc oxide, a natural mineral compound that keeps up its protection when in the sun.
If you are like most lupus warriors, you probably have photosensitivity. It is extremely important for SLE patients to find a lupus sunscreen that can is broad spectrum and provides protection against the UVA and UVB. If you have been searching for the perfect lupus sunscreen, choose one of the awesome products we have featured in this post.
If you have previously tried any of the sunscreen in our list for your lupus skin, please leave a comment below and let us know which one you liked best! Save your skin and slather on the lupus sunscreen every day!