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Diane Talbert Psoriasis fibromyalgia Inspiration More 

One More Diagnosis Doesn’t Change Who I Am

Guest post by Diane Talbert. Diane is a Blogger, Speaker, and Patient Advocate at Power Beyond Psoriasis.  She is an inspirational fibromyalgia and psoriatic arthritis warrior.  Read below for her inspirational story. If you’re living in pain everyday that’s not concentrated on just one knee or one elbow, it would undeniably be very hard to realize that your pain is changing. Whereas my joints were always painful and swollen, I noticed one evening that my muscles were also aching. And how strange that was, because I hadn’t done any vigorous…

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Lupus Fatigue and Lupus Malaise Health More 

Lupus Fatigue & Lupus Malaise

Do you ever have days where you just can’t seem to make it out of bed?  I’m talking about lupus fatigue and lupus malaise.  You know, the days where your body has just given up and mentally you can not even process a simple conversation.  I find myself zoning out often, as if my brain is ‘too tired’ to even comprehend something someone is saying.  I HATE days like that. A total of 53–80% of systemic lupus erythematosus (SLE) patients identify fatigue as one of their primary symptoms. – Source: Int J Clin…

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Work from home jobs hiring during covid-19 Lupus and Covid-19 More Work from Home 

Remote Jobs Hiring During Covid-19 Pandemic

With astounding statistics of over 6 million Americans applying for unemployment benefits throughout the last few weeks, I have been messaged a few times about companies that are currently hiring remote works during the Covid-19 pandemic.  I decided that I would create an updated list for those who are looking for remote jobs hiring during the Covid-19 pandemic.  If you know of any other companies hiring work from home employees, please comment below or email me at info@lupuslyfe.com and I will update this list. Williams-Sonoma: Work from Home Call Center…

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lupus and coronavirus Inspiration Lupus and Covid-19 More Parenting/Relationships 

An Open Letter to my Healthy Friends During the COVID-19 Pandemic

To my healthy friends, I felt the need to write this post today to really document the state of the new reality we are living in for those who may not be to this point yet.  Within the last few weeks, things have changed drastically in Ohio and many other parts of America and the world.   I will be honest, I feel like most people probably thought I was frantic and overreacting when the first talk of coronavirus made the news.  Yet, as someone with a chronic illness and who…

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lupus friendly jobs More Work from Home 

Lupus Friendly Jobs

4-24 update: Check out these companies hiring remote workers during Covid-19. When it comes to looking for lupus friendly jobs, I think it is important to note that it will vary on what job may be good for you and what may be good for another lupie.  As lupus symptoms vary person to person, you may feel inclined to work certain positions like a chat support job instead of a call center job.  The good news is there are many lupus friendly jobs out there and you are apt to…

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Lupus & Cold Sores Health More 

Lupus and Cold Sores

You hear a lot about lupus mouth sores and nose sores, but what about lupus and cold sores?  For many years, I would get a cold sore in the exact same place on my top lip.  I never really paid attention to when I would get these until I was diagnosed with lupus.  When I am experiencing a bad flare, these lupus cold sores always make a nice and dramatic entrance on my face. So there was definitely no surprise when I had a cold sore pop up with this…

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lupus and weighted blankets Health More 

Lupus and Weighted Blankets

Looking to Buy a Weighted Blanket for Lupus? If you suffer from lupus, you probably understand the pain that many of us suffer from daily.  Even though we are so completely fatigued throughout the day, there are many nights that we may lay awake from insomnia or painsomnia.  A decent night’s sleep can really determine what kind of day we will have in the morning. So naturally, I got a spark of interest when I begin to hear the rave reviews from friends and family members that have tried weighted…

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lupus mom blog More Parenting 

10 Fun Things to Do With Your Kids as a Chronic Illness Parent

As a mom of two boys 10 and under and as a lupus & fibromyalgia warrior, I completely understand the importance of keeping the kids involved and entertained while you may be physically and mentally struggling.  It may seem hard to find fun things to do with your kids as a chronic illness parent, but it doesn’t have to be! Having a chronic illness is not just hard on us as the patients, but it can take its toll on your family and friends as well. It is hard for…

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septoplasty turbinate reduction lupus Health More 

Septoplasty with Turbinate Reduction and Lupus

I have not been very active on my lupus blog lately due to having surgery on my nose earlier this summer, my chronic idiopathic urticaria  and recently my partial nephrectomy I had for Kidney Cancer. A few months ago, I had septoplasty with turbinate reduction done to help me with breathing issues I had been having for quite some time.  After an initial CT scan requested from my ENT doctor, I was diagnosed with a deviated septum and bilateral concha bullosa. The CT scan also said that I had a…

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holidays with lupus and trigeminal neuralgia flare Health More 

Holidays with Lupus and Trigeminal Neuralgia Flares

If you have followed my blog for a while, you probably are aware that I also suffer from bilateral trigeminal neuralgia and atypical face pain as well.  I have been for fortunate with all of my health related issues in 2019, that the trigeminal neuralgia didn’t really flare too much this year.  So, naturally, my body decides to celebrate the holidays with lupus and a trigeminal neuralgia flare. I figured I was definitely experiencing the beginning of a lupus flare this last week.  My joint and muscle pain was raging. …

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